Pages

Tuesday, March 26, 2013

The Internet World of PKD (Polycystic Kidney Disease)

Today's blog is catch up in the world of Polycystic Kidney Disease.  My last blog was way back on Feb. 14th.  Work and life swept me away but now I'm heading back in to shore.

MARCH IS STILL NATIONAL KIDNEY MONTH!

We are coming into the end of National Kidney Month.  With my little swim out to sea, I really didn't get to participate much.  But its better late than never as they say.  I've read so much great information.  Not only from our own PKD Foundation and it's chapters but also from many other organizations and foundations that posted inspiring, helpful and healthful information.   In this day and age of the internet it is truly amazing the information afforded to us. I thought I'd mention some great sites we as kidney disease patients can always go to and get answers,  address our fears, show us how to be as healthy as possible and always give us hope!

PKD Foundation                                                     The American Association of Kidney Patients            

National Kidney Foundation                                   National Kidney Center 

American Kidney Fund                                           Kids Health (have a tab for kids only!)

National Kidney Disease Education Program        American Society of Nephrology

Davita Dialysis Centers                                          Fresenius Dialysis Centers

The Nephron Information Center                            Wikepedia-Chronic Kidney Disease

National Kidney and Urologic Diseases Information Clearing House (NKUDIC)

I'd like to mention here to remember there's more to National Kidney Month than just reading information about taking care of yourself.  Please take time to tell your friends and family to learn about how to take care of their own kidneys so they never have to experience kidney disease.

SO MUCH MORE ON THE NET FROM THE PKD FOUNDATION!

The above sites are all professional websites but there are so many blogs and FB pages about PKD that I've been discovering, following and reading lately, I just had to include them in today's post.  We may be the "great unknown disease" but lord do we have a great community.  Taking the time to read some of these will make you laugh and cry.  It will make you feel so close to people you've never even met.  It is truly so wonderful to feel that you're not alone.

Here are just a few.  Do you own searches and please make a comment and let us know the ones we've missed!

BLOGS                                                                  FACEBOOK PAGES

PKD Foundation Blogs (a bunch)                         PKD (Polycystic Kidney Disease) "Cystahood"

Kidney and Eyes                                                    PKD Foundation      (open)                                      

Surviving PKD                                                       The Fight to Stop PKD  (open)

PKD Blog-Life with PKD                                        Polycystic Help and Advice  (closed group)

Living with PKD                                                      Polycystic Kidney Disease (closed group)

New to PKD                                                           Polycystic Awareness Group (closed Group)

Hope you all find a family in these blogs and pages.  We have such an amazing community and we say PSHAW to not finding love, family and most of all a cure!

Marlene Stewart
Coordinator
PKD Foundation - Atlanta Chapter